First off I will just say thanks for all the sweet comments on the video I made for the "I Believe" free IVF contest. The voting starts today and ends on Friday. Here is the link so you can go vote, and if you could share it with all of your friends, that would be great. It is going to be in the primary infertility category under the Rasmussen Family Becky and Dereck. I believe you can only vote twice from the same IP address.
November 30th-December 3rd
I got my blood drawn on November 30th to check my prolactin levels. Then I had to wait the whole weekend until Monday to get the results. I was antsy and couldn't wait to hear the results, so I called the lab directly and had them fax them to me. My RE wanted my levels to be under 20. My prolactin level was 132.5. Fuck! I threw a huge tantrum and then called my nurse at our fertility clinic.
My nurse said that she would give the results to our RE and then get back to me on what he wants to do. When she called back she said that if I was going to be the one carrying the baby there is no way we could do the January cycle with my prolactin levels the way they are, but since Jessica is going to be carrying our baby(s) there is a chance this could still work. He said he needed some time to think about this and would call me the next day.
Tuesday came and I had really hoped my RE would call me right away in the morning, but of course he didn't. He finally called at around noon. He said that he can't believe I didn't stop pumping until September and said that I was supposed to have stopped sooner than that. I was a little angry hearing that because, as I said in my last update, that when we first met with them he said I would be fine pumping as long as I stopped 8 weeks prior to the start of the meds. He also went onto say that he is frustrated that he is first hearing now that I have had high prolactin levels before and have taken meds to lower it. He said if he would've known that he would've checked my levels sooner. Last time I checked he is the fricken doctor and I am the dumb patient. Am I right? Why would I have ever thought to bring prolactin up to him? I didn't even know prolactin played as big of a role in getting pregnant as I do now. Ugh!
So since my prolactin levels were so high and I am neither pregnant or nursing he said I needed to get a pituitary MRI right away to make sure I don't have a tumor growing. Luckily, since I work in the medical field I have great connections and was able to get squeezed in for an MRI later that day. I also know the Radiologist, so after the MRI I asked him to look at it right away. He said he doesn't see anything but is going to send the images to his friend who is a neuroradiologist and looks at these things all day. They were having some computer issues though, so hopefully I will know the final result this week.
My RE then put me on Dostinex. He also changed my birth control pills because the estrogen based one I was on can apparently raise prolactin levels as well. I have done so much research on prolactin my head hurts, but I am trying everything I can to lower my levels. I have learned that Zinc and B6 apparently can lower prolactin so I am consuming a lot of it. I wonder if its possible to overdose on them?
That same day, after talking with the RE, Dereck and I had our counseling appt. for this whole process. I had to share our story and why we are using a carrier. It went pretty well I guess.
The next day Dereck needed to get another infectious disease test done. This was a whole other issue we are having with our fertility clinic. They apparently couldn't find a clinic in Alaska to run the tests Dereck needed. Which doesn't make sense to us. Seriously, this whole satellite clinic crap that is supposed to be sooo convenient is such a bunch of bullshit! Our clinic even sent my Ob doctor a fax saying she needed to find a place to get this stuff done. When I talked to my Ob she seemed rather confused about this as well. What's so special about there lab that one up here in Alaska can't do? In the end the clinic just shipped us the tubes that were needed for Dereck to get his blood drawn and a urine sample. We then took it all to FedEx and shipped it to MN to there preferred lab to run it. Hopefully it all made it to their lab and looks good. otherwise Dereck might have to fly there to get them done again. So dumb!
I believe this past week Jessica and her husband got their infectious disease panels done as well.
Yesterday I got an email from my lawyer saying that he spoke to Jessica's lawyer about the contract. So today I will be calling him to discuss the changes that they want made. Hopefully by the end of this week or at the latest next week the contract will be complete. Then the only thing left is waiting on my prolactin results.
December 20th I will be getting my prolactin level checked again. My RE said that if it shows a significant decrease then he feels we might be fine to go ahead with everything. I really hate all this waiting and that's all I seem to be doing these days. I kind of feel like I want them to just tell me too bad and that we have to wait until March. I feel they are just giving me this false hope and just letting me think their might be a chance when their really isn't. At any rate, I will just keep taking my Dostinex and doing whatever else I can do to help lower my prolactin level. Oh and apparently stress can raise prolactin......crap.
Frick. I'm so sorry your RE reacted that way. Doctors can really be jerks sometimes. They should remember who the customer is, no?ReplyDelete
As for overdosing on the B-6, they do say to watch how much you take b/c there can be nerve damage (can they be more specific?!). I take 50mg 3x per day for my morning sickness and am at the upper limit in dosing.
Hugs, honey! Think of you always...and can't wait to vote for your video!
I've had high prolactin levels before and I was given Bromocriptine to lower them (a different med than you were given but does the same thing). Hopefully it works fast for you. I think my level decreased pretty quickly after taking the meds (although it didn't help my cycles at all, but that's another story). Hope everything goes well and you make it for the January deadline!ReplyDelete
Keeping my fingers crossed that your prolactin level goes down and everything is a go for January. I hate that you have to go through all this.ReplyDelete
Seriously, you're right - they are the doctors and you are the patient, what are they getting paid for? I had a similar issue with an RE one time saying I should have spoken up about something - well I was the patient so how did I know I should have spoken up?ReplyDelete
It sounds like it's all coming together and right before you start it seems the slowest. I will keep praying that your prolactin levels go down enough so you can get started ASAP!
I have voted for your video and also shared it with my friends. I just hope it winsReplyDelete